Sarah's mom and dad
Sarah's mom and dad
Sarah's mom and dad
Sarah's mom and dad

Resources For Parents

Rett Information Sites

International Rett Syndrome Foundation
The IRSF focuses on research seeking treatments and a cure, Family Support and Advocacy.
International Rett Syndrome Foundation

Rett Syndrome Research Trust
A newly formed 501(c)(3) nonprofit organization intensively focused on the development of treatments and cures for Rett Syndrome and related MECP2 disorders.

Rett Angels
Rett Syndrome forum and online support group sharing personal stories and information.

Rett Syndrome Fact Sheet
Rett Syndrome fact sheet prepared by the National Institute of Neurological Disorders and Stroke (NINDS).

Building or Adapting Toys

Adapted Toy Information
This site contains a variety of tips for adapting or creating toys for children with disabilities, or for making the play environment more accommodating.

Sponsored by Dragonfly, a Canadian commercial vendor of adapted toys, PLAY Pen contains a variety of articles on disability and children, including information on recreational and educational play. Particularly useful are a series of tips that appear on the left side of the page and that change each time the page is reloaded or a new page is brought up within the site.

Toys for Kids with Special Needs
This is an on-line newsletter with short articles on providing toy-related accommodations.

Toys for Tots with Disabilities
Article from BusinessWeek which provides general and specific recommendations for choosing toys for disabled children, as well as links to some additional resources.

Family Friendly Fun and Special Needs Resources
Offers access to mind, body and spirit- enriching information that enhances the quality and enjoyment of family life with special needs.

Public or Charitable Resources

Kiddies Rehab International
"Kiddies Rehab International Foundation [gives] disabled children a chance to develop." This site, based in Holland, details the projects, services, and publications of the Foundation, including one publication on "Making toys with local material." (Ordering information is not yet provided.)

National Association of Toy & Leisure Libraries (England)
The site describes the British network of toy lending libraries for children with and without disabilities and leisure libraries, which provide "recreational facilities for adults with learning difficulties and their families." The network also offers several publications for a modest cost. Links are included to other national library associations in Canada, France, India, Australia, and Switzerland; only the Swiss site appears to have particular awareness of the needs of children with disabilities.

National Lekotek Center (United States)
"The mission of the National Lekotek Center is driven by the philosophy that children learn best when play is a family-centered activity that includes all children, regardless of their abilities or disabilities, in family and community activities." Lekotek centers provide play opportunities, training for professionals, and information dissemination at several sites around the United States, including one in Puerto Rico.

Commercial Sites

Accessible Playground Equipment
This page from "The World Playground, Parks & Recreation Products and Services Web Directory" site lists a variety of vendors from the United States or Canada that sell accessible playground equipment.

Spielzeugwerkstatt (Toy Workshop), Books 1 and 3 by Ekkehard Bartsch
Available from, his is a German book about making toys for disabled and non-disabled children.